|
Teenage Cancer Trust
www.teenagecancertrust.org
Teenage Cancer Trust is a charity devoted to improving the lives of teenagers and young adults with cancer.
There is loads of information, interactive blogs and events. It also has links to other websites which might be useful.
Jimmy Teens
www.jimmyteenstv.com
A site where teenagers and young adults share their experiences of cancer creatively.
jimmyteenstv provides a forum for young people to share their thoughts and experiences about being a teenager with cancer by giving them an opportunity to make short films. These are posted on the site and will hopefully inspire you to make a film of your own.
Connexions
www.connexions-direct.com
Are you 13-19 years old? Connexions direct can offer you all the information and advice you need to make the decisions and choices in your life e.g. careers, health, employment, housing, learning etc. Most service can be accessed at local level so contact them to find out where your local centre is.
Alternatively contact Laura; Teenage Cancer Trust Youth Support Co-ordinator who can help you make an appointment with an adviser who will see you at the Oasis. Laura.abbas@addenbrookes.nhs.uk You may also see an adviser if you are 19-24.
Teens Unite
www.teensunitefightingcancer.org
Teens Unite Fighting Cancer is dedicated to improving the lives of young people aged between 13-24 with life limiting illnesses.
- Help give teenagers quality time together on special days out.
- Grants for hair replacement - for teenagers undergoing chemotherapy, their hairstyle is not so much an issue but rather the lack of any hair at all. We are working with White Cliff Foundation to help provide teenagers with a new non-invasive hair replacement.
- To set up and facilitate a teens user group and support network.
Wallace Cancer Care
www.wallacecancercare.org.uk
Wallace Cancer Care provides a Drop-in Centre at Addenbrooke’s Hospital, and an Off-site Centre nearby which provide practical, psychological, and emotional support free of charge to those living with cancer.
Wallace Cancer Care provides a wide range of cancer support services and programme's to serve the informational, social, psychological and emotional needs of men and women living with cancer, and those who care for them.
Wallace Cancer Care serves all those living with cancer, men and women, old and young, patients or carers. You don’t have to be a patient at Addenbrooke’s to use the services of Wallace Cancer Care.
No referral is required to use any of the services of Wallace Cancer Care. Please browse the site to see what Wallace Cancer Care can offer you and either visit the Drop-in Centre in the concourse of Addenbrooke’s Hospital, or phone or email for more information or to make a booking for one of our services.
www.clicsargent.org.uk/youth
CLIC Sargent’s head office has moved office on 19 December 2011.
CLIC Sargent
Horatio House
77-85 Fulham Palace Road
London W6 8JA
Our telephone number and email address remain unchanged:
0300 330 0803 for all enquiries including benefit advice.
info@clicsargent.org.uk
CLIC Sargent: who we are and what we do
CLIC Sargent is the UK’s leading children’s cancer charity, offering support, information and advice to children and young people aged 0-25 with a cancer diagnosis, and their families.
The CLIC Sargent team at Addenbrooke’s is made up of social workers and youth workers, and works with families across this age range from diagnosis, through treatment and on to post treatment and bereavement support.
CLIC Sargent workers offer social, emotional and practical support, which can include:
Emotional support: support for you and family as you need it. We can give an opportunity to talk in confidence about anything, from how you’re feeling to just having a chat, or finding out the answers to questions you don’t want to ask a medic! We also try to find you local services like hospices that might be able to help you or your family and friends.
Practical support: information and advice on the practical stuff which is affected by your treatment, like education or work, holiday insurance, parking at the hospital and loads more.
Financial support: we can help you and your family in applying for benefits, and give info on other sources of financial aid such as charity grants. Benefits for teenagers and young people can be very complicated, so it’s probably a good idea to let us help with this! You can also speak to the CLIC Sargent benefit advisor.
Social support: it can be really good to meet others who have had a similar experience to you, so if you’re aged 14-24 you will be invited to join in CLIC Sargent trips and activities, and you can come along up to five years after you finish treatment (or ‘til you get too old!) Our trips are always really good fun, and lately we have been ice skating, bowling, to the TCT gigs at the Albert Hall, go-karting and quad biking and loads more. So to have fun, try new things and meet some cool people, make sure you sign up for trips with the leaflet in your welcome pack.
Information: when you first meet your CLIC Sargent worker, you will be given a welcome pack with a huge load of information in it on everything from benefits to side effects, body image to useful websites, and holidays and special days to good questions to ask your doctor. You can have extra copies for friends or family if you want them. The CLIC Sargent team have got tons of other booklets and leaflets on all kinds of issues around young people and cancer, so if there’s something you’re looking for, ask us or have a look at www.clicsargent.org/publications to see a list of the booklets CLIC Sargent produce.
The Addenbrooke’s CLIC Sargent Team
The CLIC Sargent team office is on the edge of the Addenbrooke’s site. All team members can be reached by phone (there is an answer phone when no one is available), fax, post, or email:
Phone: 01223 714439
Fax: 01223 714438
Post inside the hospital: put in internal post to CLIC Sargent, Box 195
Post: CLIC Sargent, 28 Long Road, Cambridge CB2 2PS.
Email: workersfirstname.theirsecondname@clicsargent.org.uk
There is also a free CLIC Sargent helpline, staffed Monday to Friday 9-5, for you, your family and friends - see details below
CLIC Sargent has introduced a new telephone number. People who want to contact them for help, advice or information can now call them on a single number: 0300 330 0803.
Email: info@clicsargent.org.uk
CLIC Sargent website: www.clicsargent.org.uk
www.wearmyhair.com
Do you have a medical condition that means you would like to wear a wig? It might be Leukaemia, Cancer, Alopecia or stress, whatever your need, Wear My Hair can be part of the solution, not the problem.
Buffs
www.buffshop.co.uk
Buffs are a great alternative to Wigs. For the latest range visit the website.
Pat's Theatre Hats
Pat's Theatre hats are a company that has been making bespoke hats for over 7 years. They specialise in head scarves tht stay on the head without hair which makes them ideal for people who have alopecia or hair loss due to cancer treatment.
They are soft to the touch: cotton ribbing with chiffon, powder touch, silk or cotton.
They can make hats for children and adults.
They have a shop on ebay or you can contact them directly for a brochure.
Contact Kimberley Forster B Sc (Hons) RN, 207 Ramsay Road, London, E7 9ES or tel: 07776 173101
A donation to charity will be made for every hat sold.
My New Hair
www.mynewhair.org
Providing public advice, and support a national network of independent salons and professionals who provide a wig styling service for people suffering from cancer and medical hair loss.
Youth Health Talk
This is a website about young life experiences of health and lifestyle. This is not just a website about the medical facts, this is about real people and real lives
http://www.youthhealthtalk.org
Changing Faces.....is the leading UK charity that supports and represents people who have disfigurements to the face, hand or body from any cause.
The psychological effects of disfigurement whether acquired from birth, an accident, disease or the aftermath of surgery can last a lifetime if not dealt with early on.
Our work involves:
1. Providing support for children, young people, adults and their families through our counselling services to help with the psychological and social aspects of disfigurement.
2. Working with schools & employers to ensure a culture of inclusion, and with health and social care professionals to provide better psychological care for people with disfigurements.
3. Campaigning for better policies and practices that are inclusive of people with disfigurements and for social change by working with the media, government and opinion leaders
http://www.changingfaces.org.uk/Home
Looking for a private counsellor?
The purpose of the site is ultimately to provide the UK with a huge counselling support network, enabling those in distress to find a
counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in
distress to seek help.
Every counsellor on the site who has submitted their profile has either sent a copy of their qualifications or is registered with a professional body online with recognised codes of ethics and practice, this way we can be assured of their
professionalism.
http://www.counselling-directory.org.uk/
Local website and guide for young people in Cambridgeshire, their parents, carers, friends and family... how to look after your emotional well-being when times are difficult, and what to do when you may need some extra help...
http://www.guidetoroughtimes.co.uk/default.asp?id=
HeadSmart......fantastic website about brain tumours.
HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children and young people.
This website is intended for the public and for health professionals, to help us all work together to improve diagnosis of childhood brain tumours in the UK
www.headsmart.org.uk
Travel Insurance
Have a look at this website for a range of quotes for holiday insurance. www.allcleartravel.co.uk
Feel free to ask the TYA team for other companies we could put you in touch with if you are struggling to find a quote.
Some other useful insurance sites young people have found helpful.....
http://www.miaonline.co.uk/
http://free-spirit.com/
Car Insurance....New website...
http://www.prestigekeepmoving.com/index.html
A specialist car insurance scheme, written for the specific needs of those with health issues, the disabled community, those with serious illness, carers, and their families.
|
